Ah, Monday!

Unlike most people I know, I actually like Monday's. For me it means the start of a new week with full potential and a fresh start. Today that excitement has a stronger presence than normal.

Levi finally slept well last night, which means that I (Kara) who did the night shift also slept well. Then, he actually ate the first few bites of "real" food since his surgery. He had half a pancake, which is like feast compared to what he has eaten recently.

My mom cleverly theorized that one of the hormones that he has started and took every night before bed was messing with his sleep. Our docs and nurses looked further into it and confirmed that yes indeed, one (of the many) side effects is not being able to sleep. So we worked with the docs to hold it until this am. I hadn't anticipated that there would be side effects with the hormones that he is replacing, so I guess I was quite disappointed to read the long list of side effects yesterday that is associated with each of them. Bummer.

Levi's sodium levels seems to have stabilized significantly, they only fluctuation a few points in the last 12 hours. This is key, as this is the primary factor that is keeping us in the PICU.

Pray for our 4 year old Kade, he has been such a trooper, but had a rough night last night after Dan spent the afternoon with him and then left him at my parents house. Dan and I are still trying to determine what is best for him and how to best help him feel safe, secure and loved during this time. I am planning to have the afternoon with him, bring him home and have as normal as can be evening with him. Hoping for some restorative time for us both.