Standing up, cruzing around

Well, kinda.


Today was about as eventful as it's gotten so far for Levi's rehabilitation. For PT they brought this contraption (shown above) that starts him off flat, secures him in, and then gradually lifts to 90 degrees. Today we got to about 70 degrees and then went for a cruise through the unit and for a look at the play room. Even though Levi's verbal response when asked if he liked it was, "no", the therapist and I both agreed that he really did like it. He also requested to hold his blanket for the big event, my boy loves his blanket.

I have to say, I miss all our old docs and nurses in the PICU. They were becoming like family, I mean, we were with them 24/7. The IMU peps are lovely and all, but it makes me much more eager to get to our final destination (rehab).

I've been slightly hesitant to post lately, as I feel like all of my posts would be repeating the same thing over and over again. Fever up, fever down, sodium stable, sodium low, heart rate high, heart rate better, threw up, didn't sleep, not eating, eating better and grumpy. I feel like once anything is better for any moment of time, I have learned that it can turn the other way before I could even expect it. It's hard not to feel discouraged and I know he is making progress, but I guess it is hard because it feels so slow. So slow that you can't tell it is actually happening until you take a step back from the day to day grind. It's nights like these that I am thankful that I can do just that. I have to remind myself that he is getting better and he will be my little boy who can cuddle in my lap once again, but just not tomorrow . . .or the next day.

Tonight, Kade and I are home together. We are trying to get this little guy back on some sort of decent sleep schedule and even get him back to the habit of sleeping in his own bed. I was up stairs rocking in the glider in his room while he was playing in the bath. I wasn't feel that great and I was just asking the Lord for the strength I didn't feel I had to get Kade down for the night. I was relishing in a few moments of quiet and I thought my little angel was just lost in his imagination to be that quiet for that long, so I thought I'd be a good idea for me to give a gander and check on him. Oh dear. I see an empty bottle of body wash and a very soapy tub and a very entertained 4 year old. Erg, I just bought that. Fortunately, I was too tired to really worry about it and I guess it was worth the few moments of quiet it gave me to prepare for the evening. So, since so many of you asked if there is anything I need. There is. Children's hair and body wash.

Kade then gave me the gift that I needed tonight, he went to sleep with no hesitation in his own bed. Thank you Kade, now I am really glad I was so easy on you for the body wash thing.

Thanks for still following along and for still praying and for sticking with us for the long road ahead.

-Kara