Today we enjoyed company from two of my closest friends and their family, it was a great way to pass the weekend and day and made this journey seem a little brighter.
I got locked out of Levi's room today because I was 5 minutes late for the shut down they do between 7-8 for shift change. I begged for an exception because my 2 year old was on his own in there, but the door keeper had no mercy. Now, I understand why they say to steer clear of a momma bear and her cubs, should you ever happen across them. If I had big teeth and claws I think I might have used them on this door keeper. Needless to say, I was not happy about having Levi in his room all alone, with his dinner in my hand ready to bring to him. Thankfully, he was just fine when I got to him. I won't make that mistake again.
I am headed into another night sleeping at the hospital. Each night I sleep here the more and more I hate it. I don't use the word hate lightly, but I actually do hate sleeping here. I like camping and technically this is not much different but for some reason this is just way worse. Okay, enough griping.
Levi continued to be very stable today, I think he even managed to be completely fever free today, wahoo! His sodium levels have been between 138-139 for the last few days, which is his ticket to rehab! His spirit is showing more and more and it's so fun to see him acting more like himself.
I did learn today that some of his docs want him to get an MRI on wed before they clear him of the meds he is on to fight a potential infection (nothing was ever found in any of the lab results). I am not super excited about him having to fast, and be sedated for another test, but I better go ahead and get used to it, because there are many more MRI's to come for this little guy. The good thing is that if the MRI comes back clear, he will get his last IV out and then be officially free of attachment to medical devise and cords.
I'll try to take pic of our adventures as we travel to our new room tomorrow, should be exciting. It's the little things that we have to celebrate these days. I am looking forward to leaving this room and phase of his journey behind.
Here's to hoping we actually do move tomorrow!
Kara
Can't wait to find out if he actually made it!
ReplyDeletethanks for the update! thinking of you all! Levi is amazing!
ReplyDeleteCan't wait for those phots! I couldn't imagine 5 min late and one hour locked out. So glad it all turned out ok. Sounds like a great weekend for you all. And Levi is almost IV free. That is huge! Congrats on how far he has come.
ReplyDeleteYou are so positive and strong through all this, Kara! We will keep Levi in our thoughts that he continues to get stronger every day :)
ReplyDeleteJenni Matsumoto
Yea! I hope the move goes well. Praying for you all!
ReplyDeletelooks like you had a good time with your friends. praying for that little guy everyday!
ReplyDeleteanjui
Dear Kara and Family,
ReplyDeleteI just want you to know that I read your blog every day and continue to pray for Levi and your family. I have two daughters, 2 and 7, and can't imagine how hard this must be for you. I am happy that Levi is doing so well - God is so good. Just know that you have a circle of prayer around you.
Okay, I am attemping to leave a message on here one more time. For some reason I have technical difficulties EVERY time I try and post on here-but I am persistent! It's great seeing Levi get up and around with you guys. Our heart and love go with you guys daily. Not a day goes by that we don't pray as a family for each of you and for Levi's complete healing. Through some of my biggest trials, I can look back and remember asking God for his strength for my day. Some days it was all I had to lean on was His word and His promises. As hard as trials and being uncomfortable can be, it is in the shadow of His wings where I have felt most safe. Praying His love and tenderness will envelope you mightily today...with Love, Jessica, Scott, Kale and Brae Sepulveda
ReplyDelete