Monday, August 29, 2011

An evening stroll on a perfect summer night

Who would of thought that after THREE WEEKS in the hospital we would be so excited and waiting with such anticipation to be moved to another part of the hospital with an anticipated minimum stay of another 4-6 WEEKS? But hey, you gotta celebrate the little things, because right now the little things are big things. So here are a few of the little things that happened today:
Neurology has given us the boot and no longer want to care for us, so we have been transferred to orthopedic for his rehab. This is a big thing because from the stand point of the brain surgeons, you know the REALLY smart guys, his brain is clean and healing well so lets get the kid walking again. (The smart guy comment is as no offense to any doctors out there, but the saying does go, "This isn't brain surgery." not "This isn't knee surgery.") I mean currently aside from a little black eye, and bad hair cut and a 10 inch scare across his head, you would never know he had surgery. So lets get this kid walking again.
His sodium levels have been holding in a very tight range the last few days so they are no longer taking blood samples 3 times a day to check his levels. The hormone guys feel good about his current dosage, so we are going to move forward and just make sure he his drinking and peeing enough.
He is nearly completely unplugged. There is only one wire hooked to his toe to measure his pulse and oxygen levels, and his IV PIC line. All the other monitors are off. These have been bugging Levi the whole time. His IV meds are done tomorrow, so that means that he may get his PIC line out very soon and be completely free of "hospital connections".
Because he is so stable they are going to be moving him to the new rehab unit as soon as a bed opens up. Until then we are free to go outside and do as we please. We just can't leave the campus. Once we get into rehab we will have a lot more freedom and even get some weekend passes to go home once he is doing better. That is going to be a great place to get to.
The one thing that is keeping him from being in full rehab is he is unable to do the 3 hours per day that is legally required for him to be designated as a rehab patient. The doctor feels he is only a few days away from that, but is willing to get him into the rehab unit before he is officially ready.
We are pretty excited about the little things that have happened today. As a family we are getting into a new groove,Dan and Kara are switching off sleeping here with Levi and at home with Kade. Dan is getting back to working full time and Kara's full time day job for the time being to support Levi. We are grateful for the people who have and are coming down to visit Kara during the day. Levi is a great kid and all, but not the best conversationalist. Hopefully an hour of speech therapy over the next 4-6 weeks will change that.
Thank you for walking with us along this journey. The love, support and prayers that so many have given are helping to sustain us. Blessings to you.


  1. What a great update! Your little guy is such a trooper. I know you don't know me but I continually pray for you and spread the word about Levi. The Lord has definitely laid his healing hand on him. Amen!

  2. Praise the Lord! You've turned another corner, crossed another bridge...he's on the way to making this nightmare a distant memory. We continue to follow your updates daily and are praying earnestly. Levi is so covered with prayer and's only a matter of time before he's running around and making messes. :)

  3. I get choked up knowing how God has seen Levi through this (and you as parents)...He is doing well and it's great to hear his sodium levels are now stable. I am so glad he is so young so he can have even a better chance at healing quick. I am glad that this journey is months long instead of years long. I will pray for it to be days long so you can get back to normal quicker. Thank God we still have the little guy! Levi is going to be a blessing in this world - God has a big plan for him.

    Jeremiah 29:11
    For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.

  4. We have been praying for your whole family continuously! I'm praying he will make the 3 hour mark for rehab so they will want to move him sooner! Praise the Lord for great progress!

  5. such great news. the little things are big things!!!

  6. OH GOOD NEWS! I am hoping to read soon that you will be in the beautiful new rehab room! So glad to hear the good update, loved the pictures, such a sweet face, we miss him already and look forward to the next time we see him!! Loves to you guys, A