Sunday, August 28, 2011
Today we enjoyed company from two of my closest friends and their family, it was a great way to pass the weekend and day and made this journey seem a little brighter.
I got locked out of Levi's room today because I was 5 minutes late for the shut down they do between 7-8 for shift change. I begged for an exception because my 2 year old was on his own in there, but the door keeper had no mercy. Now, I understand why they say to steer clear of a momma bear and her cubs, should you ever happen across them. If I had big teeth and claws I think I might have used them on this door keeper. Needless to say, I was not happy about having Levi in his room all alone, with his dinner in my hand ready to bring to him. Thankfully, he was just fine when I got to him. I won't make that mistake again.
I am headed into another night sleeping at the hospital. Each night I sleep here the more and more I hate it. I don't use the word hate lightly, but I actually do hate sleeping here. I like camping and technically this is not much different but for some reason this is just way worse. Okay, enough griping.
Levi continued to be very stable today, I think he even managed to be completely fever free today, wahoo! His sodium levels have been between 138-139 for the last few days, which is his ticket to rehab! His spirit is showing more and more and it's so fun to see him acting more like himself.
I did learn today that some of his docs want him to get an MRI on wed before they clear him of the meds he is on to fight a potential infection (nothing was ever found in any of the lab results). I am not super excited about him having to fast, and be sedated for another test, but I better go ahead and get used to it, because there are many more MRI's to come for this little guy. The good thing is that if the MRI comes back clear, he will get his last IV out and then be officially free of attachment to medical devise and cords.
I'll try to take pic of our adventures as we travel to our new room tomorrow, should be exciting. It's the little things that we have to celebrate these days. I am looking forward to leaving this room and phase of his journey behind.
Here's to hoping we actually do move tomorrow!