Every mothers worst nightmare came true August 7, 2011. We discovered that Levi has a brain tumor. It is located right behind his nose, around the optical nerve and pituitary gland. Thank you for following our journey and caring for our little levi by reading and passing on this blog. Many people are holding him in prayer and we are so thankful to have a faithful and loving God who hears our prayers.
Monday, August 8, 2011
Levi hasn't been himself the last 10 days; complaining of headaches, throwing up, and wanting to be held all the time. This past week he started to do funny things with his eyes, which caused us to be even more concerned. On Sunday, during our third visit to urgent care they decided that it wasn't just a flu that they initially diagnosed him with and had us admitted to Kaiser Zion. They immediately did a CT Scan and the results showed a mass in his brain as well as a significant amount of water on his brain caused by the blockage from the tumor. They decided the best place for him would be Childrens Hospital and they transported him there yesterday.
What we are learning now:
The neurosurgeons explained the difficultly with his tumor is that the location is very hard to get to, as it is in the center of his head and it is surrounding very sensitive areas such as pituitary gland and optical nerves. It is not the type of mass that typically spreads throughout his body and it is very hard to entirely remove. Estimates are that the mass is 3.5x5 cm, which for a little brain, isn't as small as I hoped.
Treatment is surgery, as radiation and Chemo are not typically effective on this type of tumor. Surgery is scheduled for this Friday, we don't have a time yet. We are thankful that the surgeon performing this 8+ hours surgery is an expert at this particular type and we feel he is in good hands. His name is Dr. Levy and he is out of town until Thursday evening but has already been involved in Levi's case.
He has an MRI for 1:30 today, that will provide the Docs a much better picture of the tumor. We expect the MRI to take a couple of hours, so hopefully we can get some rest during that time. Sleep wasn't really happening for me last night. kind of a lot to think about.
Thanks to everyone for prayer and offers of support. We all feel very loved. I will let you know if needs come up, thank you to those of you who have already filled many of them. We will likely get a room here at the Ronald McDonald house and meals are provided to us there as well.
I'll try to daily update facebook and this blog. Please pray. Please share Levi's story with anyone who has a heart to pray. We are entrusting our little Levi into His Father's hands, knowing and trusting in our loving God.